During a season where we are all prone to be a little more stretched than usual, I’ve been trying hard to be present and stay grounded for my children. Mostly I’ve been trying not to lose my calm. Really trying. So hard.
Holidays are a time for family and gratitude. For family members who we see only a few times a year, it can be hard for them to understand our unique experiences as parents of children with disabilities – and it can be easy for them to make judgment on us, our relationships with our children, […]
Sometimes we all need a little more. It looks different for all of us: more attention or more alone time, more cuddles or more space, more structure or more flexibility. Maybe it’s a developmental stage, maybe it’s circumstance, mood or personality. Whatever it is, we notice and those around us notice these moments of need.
Everybody loves to win. Children naturally infuse winning into their day; “First one to the slide gets (fill in the blank)”, “My (fill in the blank) is (better, bigger, stronger) than yours!” I’ll admit, as a mom, I do it too! I almost always regret it, but when the three boys take on sloth-like qualities […]
Why special needs families need help: Before I became a parent, I thought a little extra hard work would be enough to make it through the valleys of parenthood. When I became a special needs parent, goodness, I realized how wrong I was.
I love the holiday season. But let’s be honest, for every beautiful cookie exchange or flawless school play posted online, there’s a disaster in the kitchen or a meltdown in the car that was not on social media for all to see.
Around the United States, families are getting ready for the first weeks of school. Our family is in the middle of helping our oldest son re-enter mainstream school after a semester of medical leave, while also preparing our daughter to begin kindergarten. As soon as August arrived, we felt the stress rise.
I held his hand as the anesthesiologist put a small mask over his mouth and nose, and I watched him fall asleep. I squeezed his shoulder and kissed his cheek as his eyes lost focus and gently closed. After four days of GI, my oldest son, Jack, was “under” for his colonoscopy and endoscopy.