Last week my son stood up on skates for the first time on his own. I cannot express the intense emotion that swept over me at that moment, but I suspect you know the feeling. Pride, joy, love, glee. It isn’t the skating part that I care about. It is the perseverance and determination. Despite […]
The stress, emotion, and confusion that accompany a diagnosis for your child can be overwhelming. We are excited to share an article by Ricki Meyer, Exceptional Lives’ Director of Policy and Legal Operations, that discusses how our free resources can help parents and caregivers navigate the various disability systems and accompanying emotions upon receiving a diagnosis […]
I love the holiday season. But let’s be honest, for every beautiful cookie exchange or flawless school play posted online, there’s a disaster in the kitchen or a meltdown in the car that was not on social media for all to see.
Three years ago, I was pregnant with our youngest of three. We lived in a small house with many diagnoses under one roof‑including autism, ADHD, a connective tissue disorder, hypotonia, anxiety, Crohn’s, Celiac’s, and severe food allergies. Many of the diagnoses were new and we had upwards of sixteen therapies and appointments per week to […]
I held his hand as the anesthesiologist put a small mask over his mouth and nose, and I watched him fall asleep. I squeezed his shoulder and kissed his cheek as his eyes lost focus and gently closed. After four days of GI, my oldest son, Jack, was “under” for his colonoscopy and endoscopy.
There is judgment that comes with being a parent. There is judgment that comes with being a parent of child with special needs; a child who continually throws sand at the playground, can’t sit during mealtime, doesn’t answer when you ask a question (over…and over….and over again), or kicks and screams when things don’t go […]
June 17th, 2017 (11am-3pm) – All ages, abilities, and physical and cognitive challenges are invited to this year’s Adaptive Sports Fair at Spaulding Rehabilitation Center in Brewster, MA. Attendants will experience hands on exhibits and demonstrations that showcase the many types of equipment and fun available through the McGraw Center Adaptive Sports Programs.
In November 2016, our oldest son became very ill. His symptoms were physical at first, starting with his gastrointestinal system. Within a month, he was experiencing neuropsychiatric episodes. Within two months, his condition was so severe he was no longer able to attend school.