Everybody loves to win. Children naturally infuse winning into their day; “First one to the slide gets (fill in the blank)”, “My (fill in the blank) is (better, bigger, stronger) than yours!” I’ll admit, as a mom, I do it too! I almost always regret it, but when the three boys take on sloth-like qualities […]
1. You are an expert in your child You know your child best. You have watched your child grow, tracked milestones, and sought help when your parental instinct told you something might not be quite right. You know the techniques that will calm an outburst, the language that will get your child back on task, […]
The stress, emotion, and confusion that accompany a diagnosis for your child can be overwhelming. We are excited to share an article by Ricki Meyer, Exceptional Lives’ Director of Policy and Legal Operations, that discusses how our free resources can help parents and caregivers navigate the various disability systems and accompanying emotions upon receiving a diagnosis […]
“He has difficulties with self-regulation.” What does that mean? I’ve been thinking a lot about self-regulation. It is a term I see more and more on IEPs, psychology reports, and in education forums. What is self-regulation and why is it so important?
This week, our son Jack returned to school after 6 months of medical leave. In November 2016 he developed an infection that led to PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections). As time went on, we learned that strep was not the only trigger for the flares, and he was diagnosed with both PANDAS and PANS (Pediatric Acute-onset Neuropsychiatric Syndrome), […]
Around the United States, families are getting ready for the first weeks of school. Our family is in the middle of helping our oldest son re-enter mainstream school after a semester of medical leave, while also preparing our daughter to begin kindergarten. As soon as August arrived, we felt the stress rise.
Goodbye Summer Summer days are coming to an end. Whether your summer was schedule-free, completely structured or somewhere in between, the beginning of the school year brings change and transition. Part of me is very ready for this transition. The other part of me is trying to soak in what’s left of our summer vacation […]
I held his hand as the anesthesiologist put a small mask over his mouth and nose, and I watched him fall asleep. I squeezed his shoulder and kissed his cheek as his eyes lost focus and gently closed. After four days of GI, my oldest son, Jack, was “under” for his colonoscopy and endoscopy.