“He has difficulties with self-regulation.” What does that mean? I’ve been thinking a lot about self-regulation. It is a term I see more and more on IEPs, psychology reports, and in education forums. What is self-regulation and why is it so important?
Advice from Parents
This week, our son Jack returned to school after 6 months of medical leave. In November 2016 he developed an infection that led to PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections). As time went on, we learned that strep was not the only trigger for the flares, and he was diagnosed with both PANDAS and PANS (Pediatric Acute-onset Neuropsychiatric Syndrome), […]
Around the United States, families are getting ready for the first weeks of school. Our family is in the middle of helping our oldest son re-enter mainstream school after a semester of medical leave, while also preparing our daughter to begin kindergarten. As soon as August arrived, we felt the stress rise.
Goodbye Summer Summer days are coming to an end. Whether your summer was schedule-free, completely structured or somewhere in between, the beginning of the school year brings change and transition. Part of me is very ready for this transition. The other part of me is trying to soak in what’s left of our summer vacation […]
Three years ago, I was pregnant with our youngest of three. We lived in a small house with many diagnoses under one roof‑including autism, ADHD, a connective tissue disorder, hypotonia, anxiety, Crohn’s, Celiac’s, and severe food allergies. Many of the diagnoses were new and we had upwards of sixteen therapies and appointments per week to […]
I held his hand as the anesthesiologist put a small mask over his mouth and nose, and I watched him fall asleep. I squeezed his shoulder and kissed his cheek as his eyes lost focus and gently closed. After four days of GI, my oldest son, Jack, was “under” for his colonoscopy and endoscopy.
There is judgment that comes with being a parent. There is judgment that comes with being a parent of child with special needs; a child who continually throws sand at the playground, can’t sit during mealtime, doesn’t answer when you ask a question (over…and over….and over again), or kicks and screams when things don’t go […]
When our son Jack developed a mysterious illness in November of last year, our world turned upside down. Our once funny, vibrant, energetic boy could hardly get out of bed. Within a few short weeks, he was no longer able to attend school or participate in activities he had once loved. Over the course of […]